Format: Trade Paperback
Dimensions: 288 Pages, 5.51 × 8.27 × 0.39 in
Published: January 6, 2009
Publisher: St. Martin's Press
The following ISBNs are associated with this title:
ISBN - 10: 0312538804
ISBN - 13: 9780312538804
About the Book
"Schuyler's Monster" is an honest, funny, and heart-wrenching account of a family, and particularly a little girl, who won't give up. More than the story of a parent dealing with a child's disability, this is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs.
From the Publisher
When Schuyler Rummel-Hudson was eighteen months old, a question
about her lack of speech by her pediatrician set in motion a
journey that continues today. When she was diagnosed with bilateral
perisylvian polymicrogyria (an extremely rare neurological
disorder), her parents were given a name for the monster that had
been stalking them from doctor to doctor, and from despair to hope,
and back again.
Once they knew why Schuyler couldn't speak, they needed to
determine how to help her learn. They took on educators and society
to give their beautiful daughter a voice, and in the process
learned a thing or two about fearlessness, tenacity, and joy.
More than a memoir of a parent dealing with his child's
disability, Schuyler's Monster is a tale of a little girl who
silently teaches a man filled with self-doubt how to be the father
About the Author
Robert Rummel-Hudson has been writing online
since 1995. During that time, his work has been recognized by
the Diarist Awards at diarist.net and has been featured in the
Austin Chronicle, the Irish Times, the New
Haven Register, the Dallas Morning News,
Wondertime Magazine and Good Housekeeping, as
well as on American Public Radio''s "Weekend America."
Robert and his family currently live in Plano, Texas, where
Schuyler attends a special class for children who use Augmentative
Alternative Communication devices. Much of her days are now
spent in mainstream classes with neurotypical children her age.
“A gripping explication, shot through with equal parts horror and hope, of how parenthood can turn ordinary people into passionate advocates.” - Neal Pollack, author of Alternadad "Robert Rummel-Hudson is brave enough to reveal the damage the discovery of his child''s condition did to his marriage and to his own sense of self. He manages to repair some of the damage through close involvement with Schuyler and vigorous campaigning on her behalf. His memoir is honest, often painful and deeply personal." - Charlotte Moore, author of George & Sam "The book is engaging and honest - I''m sure it will help many parents who are struggling to find the most loving way to help their children who have "issues." - Dana Buchman, designer, author of A Special Education: One Family''s Journey Through the Maze of Learning Disabilities “Rummel-Hudson’s memoir offers a moving account of his and wife Julie’s unrelenting efforts to give their buoyant little girl a way to communicate.” – People magazine “ Relating the battle for his exceptional daughter with nimble wit, ardor and considerable descriptive ability, Rummel-Hudson has evolved from blogger to author.” – Kirkus “…A study not only in Schuyler’s vivacious and resilient personality, but also in the redeeming power of understanding…” – Publishers Weekly “This memoir, full of fear and rage and disappointment and acceptance and advo