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From the Publisher
Walker Brown was born with a genetic mutation so rare that doctors
call it an orphan syndrome: perhaps 300 people around the world
also live with it. Walker turns twelve in 2008, but he weighs only
54 pounds, is still in diapers, can't speak and needs to wear
special cuffs on his arms so that he can't continually hit himself.
"Sometimes watching him," Brown writes, "is like looking at the man
in the moon - but you know there is actually no man there. But if
Walker is so insubstantial, why does he feel so important? What is
he trying to show me?"
In a book that owes its beginnings to Brown's original Globe
and Mail series, he sets out to answer that question, a
journey that takes him into deeply touching and troubling
territory. "All I really want to know is what goes on inside his
off-shaped head," he writes, "But every time I ask, he somehow
persuades me to look into my own."
From the Hardcover edition.