31st Hemophilia Symposium: Hamburg 2000 by I. Scharrer31st Hemophilia Symposium: Hamburg 2000 by I. Scharrer

31st Hemophilia Symposium: Hamburg 2000

byI. ScharrerEditorW. Schramm

Paperback | October 23, 2001

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Some 23. 5% of all members and patients of treatment centers completed the questionnaire. One striking fact is that participation was highest amongst elderly patients with severe hemophilia, whereas only 12. 2% of family members responded. Evaluation of the results revealed that the majority of participants prefer treat­ ment in a hemophilia treatment center with a high reputation, whereas only 2. 7% consider treatment in a specialized practice to be sufficient. The reasons for that are the necessity of the 24-h-availability of a physician, regular qualified examination of joints and muscles, documentation of product batches, laboratory tests and good cooperation with other faculties. As many as 68. 9% of the patients sometimes travel more than 200 km. What certainly plays a role here is trust in the treatment center and its physicians, for it is noticeable that irrespective of the fact that 74. 3% re­ quested standardized treatment regimens for all treatment centers, only about 20% would change to a nearer center. Treatment with factor concentrates is generally considered to be very safe. That is to say, 58. 1 % regard recombinant products to be very safe, whereas only 24. 3% assume this for plasma products. When compared, there were usually no major differences observed regarding outcome (factor consumption, duration of treat­ ment). Increase in maximum storage temperature (47. 2%) and half-life (73%) were the most frequent answers to the question of what features the products should have.
Title:31st Hemophilia Symposium: Hamburg 2000Format:PaperbackDimensions:287 pages, 23.5 × 15.5 × 0.07 inPublished:October 23, 2001Publisher:Springer NatureLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:3540421319

ISBN - 13:9783540421313

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Table of Contents

Presentation of the Johann-Lukas-Schoenlein-Award.- I. Epidemiology.- HIV Infection and Causes of Death in Patients with Hemophilia in Germany (Year 1999/2000 Survey).- Hemophilia 2000 - the Annual Survey of the Austrian Hemophilia Centers.- II. Inhibitors in Hemophilia.- Changes in Epitope Specificity and in Distribution of FVIII Antibodies during Immune Tolerance Therapy (ITT) in Hemophilia A Patients with FVIII Antibodies - a Case Report.- Clinical Experience with the Modified Bonn-Malmö Protocol since 1996.- Course of Inhibitors in mild Hemophilia A with and without Immune Tolerance Treatment.- III. Therapy and Monitoring of Bleeds in Acute- and Intensive Care Medicine.- Management of Bleeding in Surgery and Intensive Care.- IV.. Pediatric Hemostaseology.- Frequency and Profile of viral posttransfusional Infections in Patients from Hemophilia Center Timisoara.- Symptomatic Onset of severe Hemophilia A in Childhood is dependent on the Presence of Prothrombotic Risk Factors.- Differences between Neonates and Adults in Plasmin Inhibitory and Antifibrinolytic Action of Aprotinin.- Shorter PFA-100 Closure Times (CT) in Neonates than in Adults: Role of Red Cells, White Cells, Platelets, and von Willebrand Factor.- V. Free Lectures.- Efficacy and Safety of a High Purity Protein C Concentrate in the Management of Patients with severe Congenital Protein C Deficiency.- Respective Roles of Factors II, VII, IX, and X in the Procoagulant Activity of FEIBA.- Capillary Microscopic and Rheological Dimensions for the Diagnosis of von-Willebrand-Disease in Comparison with other Hemorrhagic Diatheses.- Evaluation of Denaturing High Performance Liquid Chromatography (DHPLC) in the Analysis of Hemophilia A.- Vla. Poster: Clinic and Casuistic.- Rheumatoid Arthritis in a Patient with Hemophilia Arthropathy - a Case Report.- Recurrent Fatal Intracranial Hemorrhage (ICH) in Two Non-Identical Twins suffering from Hemophilia B (Factor IX Activity <_20_125_29_.-20_progression20_of20_thrombosis20_under20_low20_molecular20_weight20_heparin20_without20_heparin-induced20_thrombocytopenia20_in20_a20_young20_man3a_20_a20_case20_report.-20_cardiac20_tamponade20_in20_a20_patient20_with20_acquired20_factor20_viii20_inhibitor20_and20_chronic20_renal20_failure.-20_endoscopic20_cholecystectomy20_in20_a20_55-year-old20_patient20_with20_heparin-induced20_thrombocytopenia20_type20_ii20_and20_replacement20_of20_mitral20_and20_aortic20_valve20_and20_tricuspidal20_valve20_anular20_plasty.-20_vlb.20_poster3a_20_hemophilia.-20_successful20_orthopedic20_operations20_in20_hemophilic20_adults20_with20_inhibitors20_against20_factor20_viii.-20_evaluation20_of20_clinical20_efficacy20_of20_rfviia20_in20_pediatrics.-20_risk20_factors20_for20_thrombosis20_in20_hemophilia20_-20_an20_analysis.-20_status20_of20_pain20_in20_patients20_with20_severe20_haemophilic20_arthropathies.-20_results20_of20_a20_5-year20_clinical20_study20_with20_a20_b-domain20_deleted20_fviii20_concentrate20_28_rfviii-sq29_.-20_outpatient20_treatment20_with20_radiosynoviorthesis20_in20_hemophilic20_arthropathy.-20_requirements20_for20_future20_hemophilia20_treatment20_from20_the20_patients27_27_20_point20_of20_view.-20_vic.20_poster3a_20_hemorrhagic20_diathesis.-20_molecular20_basis20_of20_von20_willebrand20_disease20_type20_iic20_miami.-20_hemorrhagic20_diathesis20_through20_acquired20_factor20_xiii20_inhibitor.-20_liver20_transplantation20_in20_a20_patient20_with20_severe20_von20_willebrand20_disease20_type20_33a_20_levels20_of20_von20_willebrand20_factor20_following20_transplantation.-20_clincal20_course20_and20_laboratory20_findings20_in20_a20_patient20_with20_a20_new20_mutation20_causing20_wiskott-aldrich20_syndrome.-20_role20_of20_acquired20_and20_inherited20_prothrombotic20_risk20_factors20_in20_pediatric20_cerebral20_venous20_thrombosis20_-20_preliminary20_results20_of20_a20_multicenter20_case-control20_study.-20_analysis20_of20_the20_fibrinogen20_genes20_of20_4020_patients20_with20_suspicion20_of20_dys-2c_20_hypo-20_or20_afibrinogenemia.-20_vld.20_poster3a_20_thrombophilic20_diathesis.-20_hereditary20_antithrombin20_deficiency20_-20_results20_of20_a20_family20_study.-20_elevated20_factor20_ix20_and20_factor20_xi20_as20_risk20_factors20_for20_venous20_thrombosis20_and20_stroke.-20_thrombophilic20_risk20_parameters20_in20_juvenile20_c2bb_idiopathicc2ab_20_stroke20_patients.-20_inquiry20_into20_the20_significance20_of20_constantly20_raised20_fviii20_values20_as20_a20_factor20_in20_thrombophilia.-20_do20_statins20_increase20_the20_homocysteine20_level3f_.-20_alpha20_2-macroglobulin20_level20_regulates20_the20_anticoagulant20_cofactor20_activity20_of20_protein20_s20_in20_cord20_and20_adult20_plasma.-20_combined20_prothrombotic20_defects20_and20_contraceptives20_-20_risk20_factor20_for20_deep20_venous20_thrombosis20_in20_adolescence.-20_role20_of20_2320_bp20_insertion20_in20_exon20_320_of20_the20_endothelial20_cell20_protein20_c20_receptor20_gene20_in20_venous20_thrombophilia. _125_29_.-="" progression="" of="" thrombosis="" under="" low="" molecular="" weight="" heparin="" without="" heparin-induced="" thrombocytopenia="" in="" a="" young="" _man3a_="" case="" report.-="" cardiac="" tamponade="" patient="" with="" acquired="" factor="" viii="" inhibitor="" and="" chronic="" renal="" failure.-="" endoscopic="" cholecystectomy="" 55-year-old="" type="" ii="" replacement="" mitral="" aortic="" valve="" tricuspidal="" anular="" plasty.-="" vlb.="" _poster3a_="" hemophilia.-="" successful="" orthopedic="" operations="" hemophilic="" adults="" inhibitors="" against="" viii.-="" evaluation="" clinical="" efficacy="" rfviia="" pediatrics.-="" risk="" factors="" for="" hemophilia="" -="" an="" analysis.-="" status="" pain="" patients="" severe="" haemophilic="" arthropathies.-="" results="" 5-year="" study="" b-domain="" deleted="" fviii="" concentrate="" _28_rfviii-sq29_.-="" outpatient="" treatment="" radiosynoviorthesis="" arthropathy.-="" requirements="" future="" from="" the="" _patients27_27_="" point="" view.-="" vic.="" hemorrhagic="" diathesis.-="" basis="" von="" willebrand="" disease="" iic="" miami.-="" diathesis="" through="" xiii="" inhibitor.-="" liver="" transplantation="" _33a_="" levels="" following="" transplantation.-="" clincal="" course="" laboratory="" findings="" new="" mutation="" causing="" wiskott-aldrich="" syndrome.-="" role="" inherited="" prothrombotic="" pediatric="" cerebral="" venous="" preliminary="" multicenter="" case-control="" study.-="" analysis="" fibrinogen="" genes="" 40="" suspicion="" _dys-2c_="" hypo-="" or="" afibrinogenemia.-="" vld.="" thrombophilic="" hereditary="" antithrombin="" deficiency="" family="" elevated="" ix="" xi="" as="" stroke.-="" parameters="" juvenile="" _c2bb_idiopathicc2ab_="" stroke="" patients.-="" inquiry="" into="" significance="" constantly="" raised="" values="" thrombophilia.-="" do="" statins="" increase="" homocysteine="" _level3f_.-="" alpha="" 2-macroglobulin="" level="" regulates="" anticoagulant="" cofactor="" activity="" protein="" s="" cord="" adult="" plasma.-="" combined="" defects="" contraceptives="" deep="" adolescence.-="" 23="" bp="" insertion="" exon="" 3="" endothelial="" cell="" c="" receptor="" gene="">