A House Called Helen: The Development of Hospice Care for Children by Jacqueline WorswickA House Called Helen: The Development of Hospice Care for Children by Jacqueline Worswick

A House Called Helen: The Development of Hospice Care for Children

byJacqueline Worswick

Paperback | October 1, 2000

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When the first edition of A House Called Helen was published in 1993, there were only a handful of children's hospices in existence, all of them within the UK. There are now more than twenty in operation, and a significant number at the project stage, in the UK alone, and children's hospiceshave been set up in Canada, the USA, Australia and continental Europe. The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established and the growth in the number of children's hospices has seen corresponding importantdevelopments in the field of paediatric palliative care. This book provides an authoritative account of how Helen House came into being. It records the events surrounding the foundation of the hospice and how it stemmed directly from what was learnt from the events following the sudden illness of the author's eldest daughter Helen, after whom it wasnamed. The book sets out the philosophy which underpinned the hospice, which was taken up as the guiding philosophy of children's hospice care. It describes the hospice's operational framework and details the service provided by Helen House, which is widely cited as a model for children's hospicecare worldwide. It provides valuable insight into the needs of the families who use hospice services and touches both on the difficulties they face caring, often over a long period of time, for a child with a life-limiting illness, and on the role and attitudes of professionals and indeed of thepublic at large. In this new edition an additional chapter reviews the growth of children's hospices and reflects on the challenges they face in their maturity. It considers the development of children's hospice care in relation to wider service provision and examines current and future issues surrounding the careof children with life-limiting illness.
Jacqueline Worswick is founder of Helen House in Oxford, the first hospice for children in the UK
Title:A House Called Helen: The Development of Hospice Care for ChildrenFormat:PaperbackPublished:October 1, 2000Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0192632353

ISBN - 13:9780192632357


Table of Contents

Introduction1. Helen's illness2. Home from hospital3. Frances and Helen4. Planning the hospice5. The vision becomes reality6. After the opening7. The philosophy at work8. Reflections on years of caring9. Conclusion10. Into the new millennium

Editorial Reviews

`The book will be essential reading for individuals training in the field of palliative care and is important for any professional or lay person involved in the care of seriously ill children.'Professor Clifford C. Bailey, Consultant Paediatric Oncologist, United Leeds Teaching Hospitals Trust and Director of Research and Development, NHS Executive, Northern and Yorkshire