Beyond Consent: Seeking Justice in Research by Jeffrey P. KahnBeyond Consent: Seeking Justice in Research by Jeffrey P. Kahn

Beyond Consent: Seeking Justice in Research

EditorJeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman

Hardcover | September 1, 1998

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Patients with cancer and AIDS now clamor for access to clinical trials. Federal policies governing research that once emphasized protecting subjects from dangerous research now promote access to clinical research. Have claims about justice and access to the benefits of research eclipsedconcerns about consent and protection from risks? How can we make good and fair decisions about the selection of subjects and other questions of justice in research? Beyond Consent examines the concept of justice and its application to human subject research through the different lenses of important research populations: children, the vulnerable sick, captive and convenient populations, women, people of color, and subjects in international settings. To set thestage for this examination, and introductory chapter addresses the evolution of research policies. After a look at specific subject populations, the authors discuss the concept of justice for research with human subjects in the future and analyze justice throughout the research enterprise.
Jeffrey P. Kahn is at University of Minnesota. Anna C. Mastroianni is at University of Washington.
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Title:Beyond Consent: Seeking Justice in ResearchFormat:HardcoverDimensions:208 pages, 9.29 × 6.3 × 0.91 inPublished:September 1, 1998Publisher:Oxford University Press

The following ISBNs are associated with this title:

ISBN - 10:0195113535

ISBN - 13:9780195113532

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Table of Contents

1. Jeffrey Kahn, Anna Mastroianni (both at the University of Minnesota), Jeremy Sugarman (Duke University): Changing Claims About Justice in Research: An Introduction and Overview2. Charles R. McCarthy (Georgetown University): The Evolving Story of Justice in Federal Research Policy3. Baruch Brody (Baylor College of Medicine): Research on the Vulnerable Sick4. Robert M. Nelson (Medical College of Wisconsin): Children as Research Subjects5. Nancy Kass (Johns Hopkins University): Gender and Research6. Patricia A. King (Georgetown University): Race, Justice and Research7. Jonathan D. Moreno (University of Virginia): Convenient and Captive Populations8. Ruth Macklin (Albert Einstein College of Medicine): Justice in International Research9. Madison Powers (Georgetown University): Theories of Justice in the Context of Research10. Jeffrey Kahn, Anna Mastroianni, Jeremy Sugarman: Implementing Justice in a Changing Research Environment

Editorial Reviews

"...well organized, makes a clear, poignant argument, and advances the ethical discourse on research on human subjects."--Cambridge Quarterly of Healthcare Ethics