Childhood Leukemia: A Guide For Families, Friends & Caregivers by Nancy KeeneChildhood Leukemia: A Guide For Families, Friends & Caregivers by Nancy Keene

Childhood Leukemia: A Guide For Families, Friends & Caregivers

byNancy Keene

Paperback | February 1, 2010

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Approximately 3,300 children are diagnosed with leukemia in the United States each year. The illness and its treatment can have a devastating effect on family, friends, schoolmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time. Author Nancy Keene provides parents and family members with: • Updates on treatment, including stem cell transplants, information about tailoring drugs dosages to children’s genetic profiles, and new methods for dealing with side effects. • Practical advice on how to cope with medical procedures, hospitalization, school, family, and financial issues. • Suggestion son ways to form a partnership with the medical team. • Stories from family members who have coped with leukemia and its treatments. • Updated resources for medical information, emotional support, and financial assistance. • A pull out medical record-keeper. Parents who read this book will find understandable medical infomation, obtain advice that eases their daily life, and feel empowered to be strong advocates for their child.
Nancy Keene, a well-known writer and advocate for children with cancer, is the parent of a 22-year survivor of high-risk acute lymphoblastic leukemia. She is one of the founders of the nonprofit Childhood Cancer Guides, and she has written many books for families of children with cancer, including Childhood Cancer Survivors; Your Child...
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Title:Childhood Leukemia: A Guide For Families, Friends & CaregiversFormat:PaperbackDimensions:503 pages, 9 × 7 × 1.15 inPublished:February 1, 2010Publisher:Childhood Cancer GuidesLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:1941089054

ISBN - 13:9781941089057

Reviews

Editorial Reviews

"This is the most comprehensive resource available for parents and caregivers of children diagnosed with leukemia. These families must become immediate experts and Childhood Leukemia: A Guide for Families, Friends & Caregivers presents up-to-date information in understandable language. Parents find the vignettes helpful, comforting and encouraging. We believe so strongly in this book that a copy is given to each family." —Mary McSherry, ACSW, LSW Social Worker, Division of Oncology, The Children's Hospital of Philadelphia "This book is an extraordinary resource. In its pages the reader will find clear, concise, and understandable information about childhood leukemia. And even more powerfully, the reader will "hear" the voices of parents who share their experiences in their own words: what worked, what didn't, what helped, what hurt. Families, friends, and caregivers who use this book will have information and support at their fingertips, and a powerful tool with which to help young people with leukemia get what they need to claim their lives in spite of this disease and the toll it takes." —Kathy Ruccione, PhD, MPH, RN Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program Children's Hospital of Los Angeles "I highly recommend Childhood Leukemia to all families of children with leukemia. It is an immediate help for the newly diagnosed parent and a comprehensive reference for the subsequent years of treatment. This book covers everything-and I mean everything-that a parent needs to know about the issues surrounding treatment for childhood leukemia. It amazes me that for a disease as rare as childhood leukemia, someone as talented a writer as Nancy took the time to write such a complete and useful book." —Patty Feist, MS Parent a survivor of ALL, Webmaster, Pediatric Oncology Resource Center "Childhood Leukemia was and is an invaluable resource for me. I discovered it a few months into my daughter's leukemia journey and have read and reread it. When Katie was first diagnosed I was told mountains of information, but was unable to absorb much of it due to the initial shock of having a child with cancer. Having all that information and much more at my fingertips has been a huge help. Sometimes it helped me just to know what questions to ask. Even now, months after treatment has ended, I continue to refer to the book for information about the different drugs that were used; I also use the book to help other parents who have questions." —Pat Lee Mother of a leukemia survivor "Nancy Keene, whose daughter survived childhood leukemia, offers help and support in this comprehensive guide for families, friends, and health care providers of childhood leukemia patients. Leukemia Society staff and volunteers regularly use this guide as a valuable reference tool. 'This is an excellent guide for living and coping with childhood leukemia,' says Hildy Dillon, Director of the Information Resource Center at the Leukemia Society of America." —NewsLine Leukemia and Lymphoma Society "This is the definitive book for lay people, parents of children with cancer, and survivors of childhood cancer themselves. We routinely provide a copy to all of our patients and families who are enrolled in our long-term survivor follow-up clinic for their education. It's a treasure chest of information." —Sharon B. Murphy, MD Chief, Division of Hematology/Oncology Children's Memorial Hospital Chicago, IL "I am the great grandmother to a little four-year-old girl who has the type of leukemia known as ALL … I am 90 years old and was a bookseller for 25 years … Your book is so complete and so helpful in every way, that I couldn't resist sending you my compliments for writing it. Bless you." —Alice H. Sobey (one of dozens of thank-you letters sent to the author)