Children as Research Subjects: Science, Ethics, and Law

Hardcover | February 1, 1994

EditorMichael A. Grodin, Leonard H. Glantz

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Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Doparents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficultissues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing researchwith children.

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From the Publisher

Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Doparents have the authority to volunteer their...

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Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer thei...

Michael A. Grodin, M.D., FAAP, is a Medical Ethicist, Professor of Health Law, Pediatrics, Socio-Medical Sciences and Community Medicine, Adjunct Professor of Philosophy, and Director of the Program in Medical Ethics at Boston University Schools of Medicine, Public Health and the College of Liberal Arts. He has been Chairman of the In...

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Format:HardcoverDimensions:272 pages, 9.49 × 6.3 × 0.98 inPublished:February 1, 1994Publisher:Oxford University Press

The following ISBNs are associated with this title:

ISBN - 10:0195071034

ISBN - 13:9780195071030

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Table of Contents

I. History1. Historical Overview: Pediatric Experimentation, S. Lederer, M. GrodinII. Science2. Scientific Issues in Biomedical Research with Children, R. Kauffman3. Scientific Issues in Psychosocial and Educational Research with Children, G. KoocherIII. Ethics4. Ethics of Exposing Children to Risks in Research, D. BrockIV. Law5. The Law of Human Experimentation with Children, L. GlantzV. Practical Problems6. Children's Involvement in Research Participation Decisions: Psychological Considerations, L. Weithorn, D. Scherer7. Assessment of Risk to Children, E. Wender8. Vulnerable Children, R. CookeCodes of Ethics: Nuremburg Code; WHO Declaration of Helsinki IV; Federal Policy for the Protection of Human Subjects: Notices and Rules; Points to Consider in Proposing or Reviewing Research Involving Children

Editorial Reviews

"This volume will be very useful to many involved in conduct of research on children who need a fine review of the ethical, legal and scientific issues involved."--Journal of Nervous and Mental Disease