Childrens Palliative Care in Africa

Paperback | August 1, 2009

EditorJustin Amery

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Children's palliative care has developed rapidly as a discipline, as health care professionals recognise that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, wherethe scale of the problem is overwhelming and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 84% of these are in the developing world. Despite the enormous need,provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with theshortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance on improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care - including communication, assessment,symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy - but always retains the focus on the particular needs of the health care professional in Africa. Whilst containing some theory, the emphasis is onpractical action throughout. It will provide health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.

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Children's palliative care has developed rapidly as a discipline, as health care professionals recognise that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, wherethe scale of the problem is overwhelming and t...

Justin Amery was Medical Director at Helen House (the world's first children's hospice) from 1995-2005, and helped design, develop, and direct one of the world's first hospices for young adults, Douglas House. In 2006 he became Clinical Director at Hospice Africa Uganda, setting up a new Children's Palliative Care service, coordinatin...

other books by Justin Amery

Format:PaperbackDimensions:336 pages, 9.69 × 6.73 × 0.68 inPublished:August 1, 2009Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199567964

ISBN - 13:9780199567966

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Table of Contents

1. Justin Amery: IntroductionSection 1: The basics of children's palliative care2. Justin Amery, Gillian Chowns, Julia Downing, Eunice Garanganga, Linda Garca and Susie Lapwood: Communicating with children and their families3. Sue Boucher and Justin Amery: Play and development4. Caroline Rose and Justin Amery: Assessment and management planningSection 2: Symptom control in children's palliative care5. Justin Amery, Michelle Meiring, Renee Albertyn and Sat Jassal: Pain6. Justin Amery and Michelle Meiring: Respiratory symptoms7. Justin Amery: Feeding and hydration problems8. Justin Amery, Michelle Meiring and Caroline Rose: Gastrointestinal symptoms9. Justin Amery, Susie Lapwood and Michelle Meiring: Neurological symptoms10. Justin Amery and Michelle Meiring: Skin problems11. Justin Amery and Michelle Meiring: Urinary symptoms12. Justin Amery, Jenny Sengooba, Ivy Kasiyre and Michelle Meiring: HIV/AIDSSection 3: Holistic care13. Justin Amery, Nkosazana Ngidi, Caroline Rose, Collette Cunningham and Carla Horne: Psychosocial and family care14. Justin Amery, Collette Cunningham, Nkosazana Ngidi, Eunice Garanganga, Carla Horne and Jenny Ssengooba: Pre-bereavement and bereavement15. Justin Amery, Eunice Garanganga and Carla Horn: Spirituality16. Justin Amery, Julia Downing and Colette Cunningham: Palliative care for adolescents17. Justin Amery, Joan Marston and Nkosazana Ngidi: Ethics and lawSection 4: Bringing it all together - caring at the end of life18. Michelle Meiring and Justin Amery: Caring for children at the end of lifeSection 5: Caring for yourself19. Justin Amery, Mary Bunn, Susie Lapwood and Gillian Chowns: Caring for yourselfSection 6: Children's palliative care formulary for Africa20. Justin Amery and Sat Jassal: Formulary