Ethical Dilemmas in Genetics and Genetic Counseling: Principles through Case Scenarios

Paperback | September 25, 2014

byJanice Berliner

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Knowledge of the genetic basis of human diseases is growing rapidly, with important implications for pre-conceptional, prenatal, and predictive testing. While new genetic testing offers better insight into the causes of and susceptibility for heritable diseases, not all inherited diseases thatcan be predicted on the basis of genetic information can be treated or cured. Should we test everyone who wants to know his or her genetic status, even when there are no possibilities for treatment? What is the role of the "right-not-to-know?" Do we test children for adult onset disorders becausethe parents just "have to know" or do we respect the children's right to choose when they are older? Do we allow commercial companies to offer genetic tests directly to consumers without the proper oversight regarding what the test results will mean? By using a creative approach that focuses on a single extended family as a case example to illustrate each chapter's key point, the authors elucidate ethical issues arising in the genetics clinic and laboratory surrounding many timely issues, including: * prenatal and pre-implantation genetic diagnosis * assisted reproductive technologies * incidental findings in genetic testing * gene patenting * testing children for adult onset disorders * direct to consumer testing Ethical Dilemmas in Genetic Counseling: Principles through Case Scenarios is essential reading for anyone interested in the ethical issues surfacing in common genetics practice. Written exclusively by genetic counselors, it makes a significant contribution to the field of ethics in genetics and thuswill appeal not only to genetic counselors but to physicians, nurses, and all those concerned with bioethics and social science.

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Knowledge of the genetic basis of human diseases is growing rapidly, with important implications for pre-conceptional, prenatal, and predictive testing. While new genetic testing offers better insight into the causes of and susceptibility for heritable diseases, not all inherited diseases thatcan be predicted on the basis of genetic in...

Janice Berliner, MS, CGC, is a Board-Certified Genetic Counselor and Senior Genetic Counselor at Memorial Sloan-Kettering Cancer Center. She has served on numerous committees as well as the Board of Directors of the National Society of Genetic Counselors and the American Board of Genetic Counseling.
Format:PaperbackDimensions:224 pages, 8.25 × 5.5 × 0.68 inPublished:September 25, 2014Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:019994489X

ISBN - 13:9780199944897

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Table of Contents

1. Rebbeca R. Anderson: Introduction to Clinical Ethics2. Daragh Conrad and Christy Stanley: The (micro) Array of Options for Preconceptional and Prenatal Testing3. Sonja Eubanks Higgins: The "ART" of Assisted Reproductive Technologies4. Dawn Allain: Testing Children for Adult Onset Conditions5. Curtis Coughlin II: These are Not the Genes You're Looking For: Incidental Findings Identified as a Result of Genetic Testing6. Laura Hercher: Is That a Threat or a Promise? Direct-to-Consumer Marketing of Genetic Testing7. Rebecca R. Anderson: Genetics and Patent Law8. Dawn Allain and Kelly Ormond: Ethical Issues in Genetic and Genomic Research