Ethics in Mental Health Research: Principles, Guidance, and Cases

Hardcover | September 12, 2007

byJames M. Dubois

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Research holds a key to preventing and effectively treating mental disorders, including ADHD, depression, schizophrenia, and substance abuse. Yet even as research holds out promise, mental health researchers face numerous ethical challenges. Responsible for ensuring participants are able andwilling to grant consent, researchers must also constantly protect privacy and confidentiality. But for so many situations, the appropriate decisions are not so clear. An individual with cognitive deficits may have difficulty understanding a research study and granting informed consent, butnevertheless wants to participate. Many studies gather private information about medical records or illegal behaviors that could lead to emotional, social, or legal harm if shared, yet state laws and institutional review boards may require researchers to breach confidentiality in specificsituations. Moreover, mental health consumers and other vulnerable research participants are frequently familiar with historical cases of abuse of human subjects, and may be mistrustful of researchers or fear exploitation. At the same time, researchers are often frustrated when they feel that advocates or institutional review boards erect barriers to research, even while failing to enhance the ethical treatment of participants. Ethical research is rarely simply about avoiding bad activities, and more frequently abouthow to pursue good research when multiple values and commitments conflict. Ethics in Mental Health Research explores how ethical issues arise in mental health research, and offers concrete guidance to researchers who seek to comply with federal regulations while conducting research that is at once ethical and scientifically credible. Case studies used throughoutillustrate a variety of situations and effective problem-solving strategies. This book is essential reading for mental health researchers, IRB members, and research advocates.

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Research holds a key to preventing and effectively treating mental disorders, including ADHD, depression, schizophrenia, and substance abuse. Yet even as research holds out promise, mental health researchers face numerous ethical challenges. Responsible for ensuring participants are able andwilling to grant consent, researchers must al...

James DuBois is the Hubert Mader Endowed Chair and Department Chair in Health Care Ethics at Saint Louis University. He has served on several National Institute of Health scientific review groups, a National Institute of Drug Abuse data safety monitoring board, an Institute of Medicine committee on organ donation, and local institutio...

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Format:HardcoverDimensions:288 pages, 6.3 × 9.29 × 1.1 inPublished:September 12, 2007Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0195179935

ISBN - 13:9780195179934

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Table of Contents

Introduction: Why Focus on Mental Health Research? 1. Ethics and Regulatory Compliance: Competing or Complementary Approaches?2. An Ethical Framework for Research3. Solving Ethical Problems: Analyzing Ethics Cases and Justifying DecisionsCase Study: Willowbrook Revisited4. Informed ConsentCase Study: Withholding information on study purpose with mothers at risk of abusing children5. Decision-Making Capacity and the Involvement of SurrogatesCase Study: Participation in a schizophrenia drug trial motivated by an unusual beliefCase Study: Waiving parental permission for qualitative research on high-risk sex practices among teens who use heroine6. Thinking about Harms and BenefitsCase Study: A study of suicidality with at-risk teens7. Justice in Recruitment and ResearchCase Study: Reimbursing participants for their time in a psychotherapy trialCase Study: Biological studies of aggressive behavior in preteens8. Research Questions and Study DesignCase Study: Placebo controlled trials involving participants with depression9. Protecting Privacy and ConfidentialityCase Study: Whether to report sex with a minor when a certificate of confidentiality has been issued10. Identifying and Managing Conflicts of InterestCase Study: Multiple illustrative vignettes

Editorial Reviews

"This outstanding book on mental health research ethics certainly will become obligatory reading for anyone contemplating research on mental illness as well as anyone responsible for the ethical and regulatory review of such research."--Doody's