Family Communication about Genetics: Theory and Practice

Hardcover | July 15, 2010

EditorClara L. Gaff, Carma L. Bylund

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Genetics is in all senses a family affair. The diagnosis of a genetic condition affects not only the patient and biological family members who may themselves be at risk, but also "family" more generally as support may be sought from those considered kin and who may or may not be at riskthemselves. It is considered best practice in genetic consultations to explore who will be informed within the family when a genetic condition or risk is diagnosed, particularly when the health of other family members is at risk. There is little guidance or consensus on how to achieve the implicitgoal of informed family members while respecting patient confidentiality, however. There is a need for practitioners to be aware of the dynamics of family communication and to have guidance about how they may sensitively facilitate communication about genetics within families. This handbook facilitates the development of clinical practices relating to family communication about genetics. Relevant theories of family communication are summarized and related to a clinical genetics milieu and, from this, frameworks for practitioners are presented. A book of this nature isparticularly timely as the completion of the Human Genome Project will result in an unprecedented amount of information about genetic constitution and health risks becoming available to individuals and their families. The presence of a potentially genetic condition in a family is not a newphenomenon. However, the growth in testing for genetic conditions, common complex conditions and variants that may influence health as well as drug metabolism means that a greater number of individuals will face decisions about communicating this information to their relatives. Many healthprofessionals in all levels of health care will be confronted with issues of responsibility and practice in family communication about genetic information as they become providers of this testing.

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Genetics is in all senses a family affair. The diagnosis of a genetic condition affects not only the patient and biological family members who may themselves be at risk, but also "family" more generally as support may be sought from those considered kin and who may or may not be at riskthemselves. It is considered best practice in gen...

Clara L. Gaff, PhD, is a certified Genetic Counsellor (Australasia), who has practiced in Australia and the United Kingdom with a focus on cancer genetics. She has been active in genetic counselling training programs and the education of health professionals in genetics. She is currently a Senior Genetic Counsellor and Clinical Asso...

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Format:HardcoverDimensions:320 pages, 9.25 × 6.13 × 0.98 inPublished:July 15, 2010Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0195369823

ISBN - 13:9780195369823

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Table of Contents

Clara L. Gaff, Carma L. Bylund: Introduction1. Carma L. Bylund, Kathleen M. Galvin, Clara L. Gaff: Principles of Family Communication2. Clara L. Gaff, Sylvia Metcalfe: Concepts in Genetic Healthcare3. Roxanne Parrot, Michelle Miller-Day, Kathryn Peters, James Dillard: Societal, expert, and lay influences4. April Trees, Jody Koenig-Kellas, Myra Roche: Family Narratives5. Maggie Gregory, Anna Middleton, Paul Atkinson: Timescapes6. Kathleen M. Galvin, Mary-Anne Young: Family Systems7. Sandra Petronio, Clara L. Gaff: Management of Privacy Ownership and Disclosure8. Heather Skirton, Carma L. Bylund: Management of Uncertainty9. Marion F. McAllister, Christina M. Sabee: Attributions and Personal Theories10. Jennifer A. Samp, Melanie Watson, Amanda Strickland: Communication Goals and Plans11. Ascan Koerner, Pat McCarthy Veach , Bonnie LeRoy: Genetic Counseling and Family Communication Patterns12. Samantha J. Leonard, Ainsley Newson: Ethical Perspectives13. Loane Skene, Laura Forrest: Legal Perspectives of Family Communication14. Jennifer Sullivan, Allyn McConkie-Rosell: Helping Parents Talk to their Children15. Clara L. Gaff, Kathleen M. Galvin, Carma L. Bylund: Facilitating Family Communication about Genetics in PracticeAppendix