Genetic Information: Acquisition, Access, and Control by Alison K. ThompsonGenetic Information: Acquisition, Access, and Control by Alison K. Thompson

Genetic Information: Acquisition, Access, and Control

EditorAlison K. Thompson, Ruth F. Chadwick

Hardcover | February 28, 1999

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This diverse collection of papers attempts to address and discuss critically issues surrounding the control of, and access to, genetic information from ethical, medical, legal and theoretical points of view. Special reference is made to the implications of genetic information for eugenics, the insurance industry, commercialisation of genetic testing, strategies for raising public awareness and the value of theoretical, ethical and socialogical frameworks in the debate.
Title:Genetic Information: Acquisition, Access, and ControlFormat:HardcoverDimensions:346 pages, 9.21 × 6.14 × 0.03 inPublished:February 28, 1999Publisher:Springer USLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0306460521

ISBN - 13:9780306460524

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Table of Contents

Eugenics. 1. Can we Learn from Eugenics? D. Wikler. 2. Preventing Genetic Impairments: Does it Discriminate against People with Disabilities? H. Kuhse. Genetics and Insurance. 3. Private Parties, Public Duties? The Shifting Role of Insurance Companies in the Genetics Era; T. Lemmens. 4. Coercion Control, and Consequence in Genetic Testing: Views on Insurance among Tested Individuals and the General Public; R.N. Mayer, et al. 5. Genetic Testing and Adverse Selection in the Market for Life Insurance: Preliminary Findings for the BRCA1 Gene Mutation; K.R. Smith, et al. 6. Genetic Engineering and German Health Insurances; T. Uhlemann. 7. Selling Souls: Ethical Theory and the Commercialisation of Genetic Information; M. Johnston. The Commercialization of Genetic Information. 8. The Ethics of 21st Century Bioinformatics: Ethical Implications of the Vanishing Distinction between Biological Information and Other Information; D. Holdsworth. 9. There is Nothing Special about Genetic Information; S. Holm. 10. High Speed Genetic Testing Technology and the Computerization of the Medical Record; C.R. Naser. 11. Ethical Questions in the Pursuit of Genetic Information: Geneticization and BRCA1; S. Sherwin, C. Simpson. 12. The Ethics of Gene Patenting; R. Macklin. 13. Paradigms of Author/Creator Property Rights in Intellectual Property Law: Ethical Implications for the Acquisition, Access, and Control of Genetic Information; R. Mackenzie. 14. Regulating the Commercialization of Human Genetics: Can We Address the Big Concerns? T. Caulfield. 15. Ethical Impacts of Human Health-Related Biotechnology in Brazil; M. Bernardes Marques. Public Awareness. 16. Adolescents and Carrier Testing: Attitudes and Ethical Presuppositions; K. Dierickx. 17. Downs Syndrome Screening: How Do They Know? R. Bramwell, S. Wade. 18. Public Perspectives of the New Genetics: The Citizens Jury Experiment; R. Iredale, M. Longley. 19. Genetics and Journalism: A View from the United States; J. Stephenson. Theoretical Concerns. 20. Genetic Information and `Genetic Identity'; R.E. Ashcroft. 21. Genetic Information and Knowing when you will Die; M.P. Battin. 22. Influences of Genetic Testing on a Persons Freedom; E. Hilt. 23. Genetic Knowledge: The Contribution of Sociologies; S. Dyson. 24. Germ-Line gene Therapy: Is the Existing UK Norm Ethically Valid? S. Dziobon. 25. Negotiating the Dilemmas of Prenatal Testing for Genetic Disorders: What is the Virtuous Person to Do? A. Gallagher. 26. Genetic Information: Questions and Worries from an African Background; G.B. Tangwa. 27. Genetic Knowledge in a Just Society; N. Holtug. 28. Biotechnology, Genetic Information, and Community: From Individual Rights to Social Duties; S.K. Hellsten. 29. Linear Destiny and Geometric Fate; E. Mordini. 30. A New Framework for the Use of Genetic Information; J.A.K. Kegley. Index.