Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and…

Hardcover | June 15, 2000

EditorMuin J. Khoury, Wylie Burke, Elizabeth J. Thomson

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With the accelerating discovery of human genes, public health professionals are increasingly confronted with a large body of scientific information that will guide public health action. Because the broad mission of public health is to fulfill society's interest in assuring conditions in whichpeople can be healthy, the integration of new genetic information in public health research, policy, and program development is unavoidable. Public health leadership is urgently needed to use genetic information to improve health and prevent disease, and to address ethical, legal and social issuesresulting from inappropriate use of such information. In the not too-distant future, disease prevention and health promotion programs will routinely consider whether or not to use genetic information to help target behavioral, medical or environmental intervention activities in order to maximizebenefit and minimize costs and harm to individuals. In anticipation of the expected growth at the interface of genetics and public health, this book delineates a framework for the integration of advances in human genetics into public health practice. It provides a comprehensive review of publichealth genetics, including chapters on important general issues such as newborn and other genetic screening, the delivery of genetic services, and the ethical, legal and social implications of the use of genetics within public health. It also reviews relevant clinical topics, the historicalbackground, cross-cultural aspects, and communication issues. Contributors come from a wide range of fields including epidemiology, biostatistics, health policy and management, health services research, behavioral and social sciences, ethics, law, health economics, and laboratory sciences.

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With the accelerating discovery of human genes, public health professionals are increasingly confronted with a large body of scientific information that will guide public health action. Because the broad mission of public health is to fulfill society's interest in assuring conditions in whichpeople can be healthy, the integration of ne...

Muin J. Khoury is at Office of Genetics and Disease Prevention, CDC, Atlanta. Wylie Burke is at University of Washington.

other books by Muin J. Khoury

Fundamentals of Genetic Epidemiology
Fundamentals of Genetic Epidemiology

Hardcover|Nov 1 1993

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Format:HardcoverPublished:June 15, 2000Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0195128303

ISBN - 13:9780195128307

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Table of Contents

PART I GENETICS AND PUBLIC HEALTH: AN OVERVIEW1. Muin J. Khoury, Wylie Burke, Elizabeth J. Thomson: Genetics and Public Health: A Framework for the Integration of Human Genetics into Public Health Practice2. Gilbert S. Omenn (University of Michigan): Genetics and Public Health: Historical Perspectives and Current Challenges and Opportunities3. Leslie Fink and Francis S. Collins (LF: National Institute of Allergy and Infectious Diseases, FC: National Human Genome Research Institute): The Human Genome Project: Evolving Status and Emerging Opportunities for Disease Prevention4. Benjamin Wilfond and Elizabeth J. Thomson (National Human Genome Research Institute): Models of Public Health Genetic Policy Development5. Melissa A. Austin and Patricia A. Peyser (MA: University of Washington, PP: University of Michigan): The Multidisciplinary Nature of Public Health Genetics in Research and EducationPART II PUBLIC HEALTH ASSESSMENT6. Janice S. Dorman and Donald R. Mattison (JD:University of Pittsburgh, DM: March of Dimes Birth Defects Foundation): Epidemiology, Molecular Biology, and Public Health7. Lorenzo D. Botto and Pierpaolo Mastroiacovo (LB: Centers for Disease Control and Prevention, PM: Catholic University, Rome): Surveillance for Birth Defects and Genetic Diseases8. J. Michael Soucie, Frederick R. Rickles, and Bruce L. Evatt (JS, BE: Centers for Disease Control and Prevention, FR: George Washington University): Surveillance for Hemophilia and Inherited Hematologic Disorders9. Steven S. Coughlin and Wylie Burke (SC: Centers for Disease Control and Prevention, WB: University of Washington): Public Health Assessment of Genetic Predisposition to Cancer10. Janet M. McNicholl, Marie V. Downer, Michael Aidoo, Thomas Hodge, and Venkatachalam Udhayakumar (Centers for Disease Control and Prevention): Public Health Assessment of Genetic Susceptibility to Infectious Diseases: Malaria, TB, and HIV11. Paul A. Shulte and D. Gayle DeBord (Centers for Disease Control and Prevention): Public Health Assessment of Genetic Information in the Occupational SettingPART III EVALUATION OF GENETIC TESTING12. Michael S. Watson (Washington University): Medical and Public Health Strategies for Ensuring the Quality of Genetic Testing13. W. Harry Hannon, L. Omar Henderson, and Carol J. Bell (Centers for Disease Control and Prevention): Newborn Screening Quality AssurancePART IV DEVELOPING, IMPLEMENTING, AND EVALUATING POPULATION INTERVENTIONS14. Robert M. Fineman and Debra Lochner Doyle (Washington State Department of Health): Public Health Needs Assessment for State-Based Genetic Services Delivery15. Jane S. Lin-Fu and Michele Lloyd-Puryear (U.S. Department of Health and Human Services): Access to Genetic Services in the United States: A Challenge to Genetics in Public Health16. Leo P. ten Kate (Vrije Universiteit, The Netherlands): Community Genetics in The Netherlands17. Victor B. Penchaszadeh (Albert Einstein School of Medicine): Delivery of Genetic Services in Developing Countries18. Scott D. Grosse and Steven M. Teutsch (SG: Centers for Disease Control and Prevention, ST: Merck and Co.): Genetics and Prevention Effectiveness19. Judith L. Benkendorf, Beth N. Peshkin, and Caryn Lerman (Georgetown University Medical Center): Impact of Genetic Information and Genetic Counseling on Public Health20. Kenneth A. Pass (State of New York Department of Health): Lessons Learned from Newborn Screening for Phenylketonuria21. Philip M. Farrell, Michael R. Kosorok, Michael J. Rock, Anita Laxova, Lan Zeng, Gary Hoffman, Ronald H. Laessig, Mark L. Splaingard, and the Wisconsin Cystic Fibrosis Neonatal Screening Group (PF, MK, MR, AL, LZ: University of Wisconsin, GH, RL: State Laboratory of Hygiene, Wisconsin, MS;Children's Hospital of Wisconsin): Newborn Screening for Cystic Fibrosis: A Paradigm for Public Health Genetics Policy Development22. Richard S. Olney (Centers for Disease Control and Prevention): Newborn Screening for Sickle Cell Disease: Public Health Impact and Evaluation23. Wylie Burke, Mary E. Cogswell, Sharon M. McDonnell, and Adele Franks (MC,SM: Centers for Disease Control and Prevention. AF: Prudential Center for Healthcare Research): Public Health Strategies to Prevent the Complications of Hemochromatosis24. Roger R. Williams, Paul N. Hopkins, Lily Wu, and Steven C. Hunt (University of Utah): Applying Genetic Strategies to Prevent AtherosclerosisPART V GENETICS AND PUBLIC HEALTH: ETHICAL, LEGAL, AND SOCIAL ISSUES25. Ellen Wright-Clayton (Vanderbilt University): Genetics, Public Health, and the Law26. Nancy Press and Ellen Wright-Clayton (NP: Oregon health Sciences University, EW-C: Vanderbilt University): Genetics and Public Health: Informed Consent Beyond the Clinical Encounter27. Scott Burris, Lawrence O. Gostin, and Deborah Tress (SB: Temple University, LG: Georgetown and Johns Hopkins Universities, DT: Centers for Disease Control and Prevention): Public Health Surveillance of Genetic Information: Ethical and Legal Responses to Social RiskPART VI COMMUNICATION, EDUCATION, AND INFORMATION DISSEMINATION28. Celeste M. Condit, Roxanne L. Parrott, and Beth O'Grady (University of Georgia): Principles and Practices of Communication Processes for Genetics in Public Health29. Susan M. Caumartin, Diane L. Baker, and Carl F. Marrs (University of Michigan): Training in Public Health Genetics30. Mary E. Davidson, Karey David, Nancy Hsu, Toni I. Pollin, Joan O. Weiss, Nachama Wilker, and Mary Ann Wilson (Alliance of Genetic Support Groups except NH at University of Wisconsin and TP at University of Maryland): Consumer Perspectives on Genetic Testing and Screening: Lessons Learned31. Leslie A. O'Leary and Debra L. Collins (LO: Centers for Disease Control and Prevention, DC: University of Kansas): Using the Internet to Disseminate Genetics Information for Public Health

Editorial Reviews

"Overall, the book is very well written, edited, and published. In addition to new information, the text provides critical thoughts and many insights into a rapidly developing field that will touch most of us some time in our professional or private lives." -- Gertraud Maskarinec, MD CancerResearch Center of Hawaii