Human Tissue Research: A European perspective on the ethical and legal challenges

Hardcover | February 20, 2011

EditorChristian Lenk, Nils Hoppe, Katharina Beier

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The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. The procurement, storage and transfer of human tissue for research purposes have posed significant questions over recent years, and a number of high profile scandals in the UKprompted the publication of the Madden Report on Post Mortem Practice and Procedures in Irish hospitals in 2006. Additionally, tissue-related research tends to be most promising if samples and information are shared across national borders, but the heterogeneity of current rules and guidelineswithin the member states of the European Union calls all the more for clarification. This multi-authored interdisciplinary text, edited by four experienced researchers, explores many of the issues concerning biobank-related research and aims to provide answers to the most urgent questions by means of ethical, philosophical, and legal investigation. It provides a fascinating insightinto a wide range of interlinking research perspectives and serves as a comprehensive reference to the state of play ethically and legally in Europe. It will be of value to medics and social scientists, human tissue researchers, and policy makers who have an interest in ethical and legal issues ofhuman tissue research.

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The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. The procurement, storage and transfer of human tissue for research purposes have posed significant questions over recent years, and a number of high profile scandals in the UKprompted the publication of the Madden Report on Po...

Dr Christian Lenk read philosophy, political science, and social anthropology at the University of Hamburg, Germany. From 2000 to 2002 he worked in two projects in the field of medical ethics and bioethics at the Universities of Marburg and Munster, financed by the German Research Community (DFG). He received his doctoral degree for a ...

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Format:HardcoverDimensions:240 pages, 9.69 × 6.73 × 0.98 inPublished:February 20, 2011Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199587558

ISBN - 13:9780199587551

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Table of Contents

Preface: Introduction by the editors1 - Key concepts of the ethical debate1. Y. Michael Barilan: The biomedical uses of the body: lessons from the history of human rights and dignity2. Rieke van der Graaf and Johannes J. M. van Delden: Exploring an alternative for informed consent in biobank research3. Austen Garwood-Gowers: Respect as a precondition for use of human tissue for research purposes4. Nils Hoppe: Risky business - re-evaluating participant risk in biobanking5. Nadja K. Kanellopoulou: Reciprocity, trust, and public interest in research biobanking: in search for a balance6. Christian Lenk: Taking solidarity seriously: do biobank institutions have a moral obligation to inform their patients on incidental health findings?7. Katharina Beier: Beyond the dichotomy of individualism and solidarity: participation in biobank research in Sweden and Norway2 - The legal regulation of human tissue research8. Jose Miola: Law, ethics, and human tissue research - integration or competition?9. Remigius N. Nwabueze: Legal paradigms of human tissues10. Bianka S. Dorr: Research with human biological material and personal data in biobanks - legal and regulatory framework in Switzerland11. Virginie Commin: Legal issues surrounding French research-focused biobanks12. Antonio G. Spagnolo, Viviana Daloiso and Lara Parente: Biobanks: ethical and legal aspects of the collection and storage of human biological material in Italy13. Jasper Bovenberg: How to achieve 'free movement of tissue' in the EU research area3 - Practices - disciplinary perspectives14. Christoph Brochhausen, Nabila Ahmed, Nicolas Rossricker and C. James Kirkpatrick: Ethical recommendations for the use of human biological material stored in pathology archives for research purposes15. Leen Trommelmans, Joseph Selling and Kris Dierickx: Informed consent when donating cells for the production of human tissue engineered products16. Susanne Weber, Dana Wilson-Kovacs and Christine Hauskeller: The regulation of autologous stem cells in heart repair: comparing the UK and Germany17. Milena D. Bister: Discovering informed consent: a case study on the practice of informed consent to tissue donation in AustriaEpilogue: Conclusions and future prospects from the articles of the present volume by the editors