Narrative and Stories: Illness, dying and bereavement

Paperback | May 13, 2009

EditorYasmin Gunaratnam, David Oliviere

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The use of narrative methods has a long history in palliative care, pioneered by Dame Cicely Saunders, founder of the hospice movement. Patient stories can be used to make sense of experiences of illness and care, to create and express meaning, to mediate and reconstruct identifications, andto encapsulate the complex relationships between the individual and their wider social and material contexts. Modern palliative care encourages user empowerment and involvement in end of life care strategies, with patient narratives becoming a powerful lobbying tool, and 'personalised care' emergingas a significant agenda.This multidisciplinary book provides a vibrant examination of work with narrative and stories in contemporary health and social care, with focus on the care of people who are ill and dying. It animates the academic literature with provocative 'real-world' examples from international contributors,including palliative care service users and those working in the social and human sciences, medicine, theology, and the creative arts. It addresses and clarifies core issues: What is a narrative? What is a story? What are some of the main methods and models that can be used and for what purposes?What practical and ethical dilemmas can the methods entail in work with illness, death and dying? How does a researcher or clinician harness and maximise the meanings and/or experience that can be manifest in patient and carer stories? As well as highlighting the power of stories to create newpossibilities, the book also acknowledges the problems inherent in narrative work, and the importance of the ethics surrounding it.As the hospice and palliative care movement evolves to meet the challenges of 21st century health care and end of life care, this fascinating book highlights how narratives and stories can be worked with in ways that are rigorous, productive, ethical, and caring.DT .

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The use of narrative methods has a long history in palliative care, pioneered by Dame Cicely Saunders, founder of the hospice movement. Patient stories can be used to make sense of experiences of illness and care, to create and express meaning, to mediate and reconstruct identifications, andto encapsulate the complex relationships betw...

Yasmin Gunaratnam is a lecturer in the Sociology Department at Goldsmiths College (University of London) and has written in the field of race equality and health and social care. She is a published poet and is interested in the relationships between art and research. Yasmin has a particular interest in qualitative research methods and...

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Kobo ebook|Aug 7 2003

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Format:PaperbackDimensions:224 pages, 9.21 × 6.14 × 0.02 inPublished:May 13, 2009Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:019954669X

ISBN - 13:9780199546695

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Table of Contents

Section 1: Concepts and approaches1. John Paley: Narrative machinery2. Sayantani Das Gupta, Craig Irvine and Maura Spiegel: The possibilities of narrative palliative care medicine: 'Giving Sorrow Words'3. Yasmin Gunaratnam: Narrative interviews and research4. Kim Devery: Narrative-based evidence in palliative care5. Gillie Bolton: Therapeutic writing: 'writing is a way of saying things I can't say'Section 2: Service and care development6. Gail Eva: Narrative, story and service evaluation - patients' stories and their consequences7. Karen Forbes: Narrative and storytelling in palliative care education and training8. Phil Cotterell, Helen Findlay and Ann Macfarlane: Patient and carer narratives and stories9. Tony Walter: Mediator deathworkSection 3: Working with patients and carers10. Arthur Frank: The necessity and dangers of illness narratives, especially at the end of life11. Irene Renzenbrink: Life story and life review12. Jonathan Koffman: The meaning of illness and symptoms13. Rachel Stanworth: Spiritual care and attentiveness to narrative14. Patsy Way: Bereavement, children and families