Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement

Hardcover | April 20, 2014

EditorDavid Oliver, Gian Domenico Borasio, Wendy Johnston

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Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow itsprogression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their familyfrom the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms iscovered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patientcare, to ensure this new edition remains the essential guide to palliative care in ALS.

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Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow itsprogression. Palliative care must therefore be ...

David Oliver is Medical Director and Consultant Physician in Palliative Medicine at the Wisdom Hospice, Rochester and Honorary Reader at the Centre for Professional Practice at the University of Kent. He is Visiting Professor at the Medical Faculty at the University of Zagreb, Croatia and Adjunct Associate Professor at Curtin Universit...

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Format:HardcoverDimensions:336 pages, 9.21 × 6.14 × 0.1 inPublished:April 20, 2014Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199686025

ISBN - 13:9780199686025

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Table of Contents

1. Chris Shaw, Annika Quinn and Emma Scotter: Amyotrophic lateral sclerosis/motor neuron disease2. David Oliver: Palliative care3. Richard Sloan, Pongratz and Gian Domenico Borasio: Communication: Breaking the news4. Wendy Johnston: Decision making5. Gian Domenico Borasio and Raymond Voltz: Advance directives6. Deborah Gelinas: Control of symptoms: Dyspnoea7. Edith Wagner-Sonntag: Control of symptoms: Dysphagia8. Laura H. Goldstein: Control of symptoms: Cognitive dysfunction9. David Oliver, Gian Domenico Borasio, and Wendy Johnston: Pain, psychological distress and other symptoms10. Sue Smith and Maria Wasner: Psychosocial care11. Robert Lambert: Spiritual care12. Ulrike Hammerbeck and Emily Jay: Multidisciplinary care: Physiotherapy13. Chris Kingsnorth and Sarah Lavender: Multidisciplinary care: Occupational therapy14. Amanda Scott and Maryanne McPhee: Interdisciplinary care: Speech and language therapy15. Dallas Forshew: Multidisciplinary care: Nursing care16. Gregory T. Carter, Sunil Kumar Aggarwa, Weiss, and Richard S. Bedlack: Complementary and alternative medicine17. Leo McCluskey, Laura Elman, and Wendy Johnston: Ethical issues18. Nigel Sykes: End of Life Care in Motor Neurone Disease19. Joy Kelly: Bereavement20. Marika Warren, Michelle Warren, and Douglas Warren: No time to waste: a family's journey from diagnosis to bereavementAppendix: List of useful websites for ALS patients