Participatory Research in Palliative Care: Actions and reflections

Paperback | January 3, 2013

byJo Hockley, Katherine Froggatt, Katharina Heimerl

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Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration,empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not onlyreducing costs but at the same time improving quality of care.While palliative care puts the patient and family at the centre, Participatory Research in Palliative Care discusses a new research methodology that puts practitioners at the heart of the research process as collaborators who work together with researchers to resolve problems in practice.Divided into three sections, it provides theoretical groundings of action research, a greater focus on exemplars from studies within palliative care, and discusses prominent issues when using such a methodology. All three sections are illustrated by an action research study undertaken by the authorwithin a palliative care setting. Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management oforganisations where people with end of life care needs are cared for, including long-term care homes.

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Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration,empowerment, and reflection. In the current climate of ...

Jo Hockley currently works as a nurse consultant leading the Care Home Project Team at St Christopher's Hospice, London, where she has been working since 1978. She has set up two hospital-based palliative care teams - one at St Bartholomew's Hospital, London and one at the Western General Hospital, Edinburgh. Since 2000, Jo has been c...

other books by Jo Hockley

Format:PaperbackDimensions:226 pages, 9.21 × 6.14 × 0.01 inPublished:January 3, 2013Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199644152

ISBN - 13:9780199644155

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Table of Contents

Meredith Minkler: ForewordList of ContributorsJo Hockley, Katherine Froggatt, and Katharina Heimerl: Introduction: Setting the sceneSection 1: Groundings1. Jo Hockley, Katherine Froggatt, and Katharina Heimerl: Action research: an overview2. Jo Hockley: Critical theory and participatory research3. Katharina Heimerl and Klaus Wegleitner: Organisation and health system change through participatory research4. Mary Lou Kelley and Margaret McKee: Community capacity development in participatory action research5. Geralyn Hynes: First, second, and third person inquiry6. Caroline Nicholson and Julie Barnes: Appreciative inquirySection 2: Exemplars7. Steffen Eychmuller and Franzisca Domeisen Benedetti: Community palliative care in Switzerland: from assessment to action8. Sue Read: Addressing bereavement support involving people with intellectual disability in England9. Patricia White and Marie Lynch: Palliative interventions and acute respiratory care in Ireland10. Sharon Kaasaleinen: Improving pain management in Canadian long term care homesSection 3: Issues11. Sharon Andrews, Fran McInery, and Andrew Robinson: Power relations: enhancing the delivery of a palliative approach in an aged care setting12. Kevin Brazil: Issues of diversity: participatory action research with indigenous peoples13. Elisabeth Reitinger and Erich Lehner: Gender perspectives in Austrian participatory research in palliative care for older people14. Katherine Froggatt: Demonstrating quality and rigour in action research: peer education on end of life issues15. Geralyn Hynes: Addressing sustainability: a hospital-based action research study16. Katherine Froggatt, Jo Hockley, and Katharina Heimerl: Challenges for collaborationIndex