Patient participation in palliative care: A voice for the voiceless

Paperback | July 9, 2003

EditorBarbara Monroe, David Oliviere

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Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core to palliative care. A voice can only become significant when it is listened to and acted upon. With palliative care increasingly addressing the needs of people with a variety of conditions in a range of settings, as well as with advances in research, technology, and information, the challenge to be 'a voice for the voiceless' is greater than ever. This book addresses key aspects in the provision of patient-centred palliative care and tracks significant developments in user involvement. It sets the philosophy within the cultural, social and political context of modern healthcare, particularly addressing issues of quality, standards,education and bereavement. A key component in the delivery of high quality palliative care is the multi-professional team. Following a discussion of teamwork, five core professions present a critical analysis of their working practices. The book concludes with a commentary from a palliative careuser and a bereaved carer. It is often somewhat glibly asserted that the patient is, or should be, at the centre of care. There have been few attempts to examine how to keep him or her there without professional needs and protocols crowding him or her out. This book asks how we listen and why we listen. The book focuses onthe challenges of how professionals can keep the needs of the patient central in clinical care and how the patient can influence the direction of that care.

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Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core to palliative care. A voice can only become significant when it is listened to and acted upon. With palliative care increasingly addressi...

Barbara Monroe, Chief Executive, St Christopher's Hospice, Sydenham, London, UK David Oliviere, Director of Education and Training, St Christopher's Hospice, Sydenham, London, UK

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Format:PaperbackDimensions:220 pages, 8.5 × 5.43 × 0.5 inPublished:July 9, 2003Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0198515812

ISBN - 13:9780198515814

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Table of Contents

Part 1: The Role of the Patient in Palliative Care1. Cicely Saunders: A voice for the voiceless2. Neil Small: The changing National Health Service, user involvement and palliative care3. Jane Bradburn: Developments in user organisations4. Sam Ahmedzai and John Hunt: Quality issues in palliative and supportive care5. Emma Davie and Bill Noble: Education in palliative care6. Juan M. Nunez Olarte: Cultural difference and palliative care7. Marilyn Relf: Bereavement carePart 2: Multi-professional perspectives8. Pam Firth: Multi-professional teamwork9. James Gilbert: Palliative medicine10. Mandy Stratford: Palliative nursing11. Lindsey Napier: Palliative care social work12. Peter Speck: Palliative care and chaplaincy13. Christine Kalus: Palliative care and psychology14. Alywyn Lishman: Conclusions15. Fiona Broughton: Conclusions: thoughts of a palliative care user