Raising Henry: A Memoir Of Motherhood, Disability, And Discovery

Paperback | October 28, 2014

byRachel Adams

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A mother’s deeply moving account of raising a son with Down syndrome in a world crowded with contradictory attitudes toward disabilities

Rachel Adams’s life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same.
 
In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

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From the Publisher

A mother’s deeply moving account of raising a son with Down syndrome in a world crowded with contradictory attitudes toward disabilities Rachel Adams’s life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia Universi...

Rachel Adams is professor of English and American studies at Columbia University, where she is also director of the Future of Disability Studies Project. She is the author of Sideshow U.S.A.: Freaks and the American Cultural Imagination. Adams lives with her husband and two sons in New York City.

other books by Rachel Adams

Indécence: 2016
Indécence: 2016

Kobo ebook|Dec 14 2016

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Format:PaperbackDimensions:272 pages, 8 × 5.13 × 0.68 inPublished:October 28, 2014Publisher:Yale University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0300198914

ISBN - 13:9780300198911

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“This is a terrific book—gorgeously written, beautifully realized.”—Michael Bérubé, author of Life as We Know It: A Father, a Family, and an Exceptional Child