Research methods in palliative care

Paperback | August 1, 2007

EditorJulia M Addington-Hall, Eduardo Bruera, Irene J Higginson

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Palliative and end of life care are concerned with the physical, social, psychological and spiritual care of people with advanced disease. It currently has a poorly developed research base, but the need to improve this is increasingly recognised. One of the reasons for the lack of research -and the variable quality of the research that is undertaken - is the difficulty of conducting research with very ill and bereaved people. Standard and well-established research methods may need to be adapted to work in this context. This means that existing research methods textbooks may be oflimited use to palliative care practitioners seeking to do research for the first time, or to more experienced researchers wanting to apply their knowledge in palliative care settings. This research methods textbook is the first to be written specifically for palliative care. It has been edited by four experienced palliative care academics with acknowledged expertise and international reputations in this field. It encompasses methods used in both clinical and health servicesresearch in palliative care, with sections on clinical, epidemiological, survey and qualitative research, as well as a section covering skills needed in any research project. Each chapter provides readers with an up to date overview of the research method in question, an understanding of itsapplicability to palliative care and of the particular challenges of using it in this setting. It is essential reading for all palliative care researchers.

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Palliative and end of life care are concerned with the physical, social, psychological and spiritual care of people with advanced disease. It currently has a poorly developed research base, but the need to improve this is increasingly recognised. One of the reasons for the lack of research -and the variable quality of the research th...

Professor Julia M Addington-Hall joined the School of Nursing and Midwifery, Southampton University as Professor in End of Life Care in 2004. She now heads the Cancer, Palliative and End of Life Care Research Group. Her current research programmes include palliative care beyond cancer (including stroke, heart failure and MND); depress...

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Format:PaperbackDimensions:336 pages, 9.21 × 6.14 × 0.67 inPublished:August 1, 2007Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0198530250

ISBN - 13:9780198530251

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Table of Contents

1. Julia M Addington-Hall: IntroductionSection 1 - Clinical Trials2. Michael I Bennett: Principles of designing clinical trials in palliative care3. Yolanda Zuriarrain Reyna, Michael I Bennett and Eduardo Bruera: Ethical and practical issues in designing and conducting clinical trials in palliative careSection 2 - Survey Research4. Julia M Addington-Hall: Survey design5. Julia M Addington-Hall: Survey research: methods of data collection, questionnaire design, and pilotingSection 3 - Epidemiological Research Methods6. Massimo Costantini and Irene J Higginson: Experimental and quasi-experimental designs7. Irene J Higginson and Richard Harding: Outcome measurement8. Marjolein Gysels and Irene J Higginson: Systematic reviewsSection 4 - Qualitative Research Methods9. Sheila Payne: Qualitative methods of data collection and analysis10. Frances Sheldon and Anita Sargeant: Ethical and practice issues in qualitative research11. Michele Crossley: Evaluating qualitative research12. Christine Ingleton and Sue Davies: Mixed methods for evaluation research13. Jane Seymour: Ethnography14. Margaret O'Connor: Documentary analysis and policySection 5 - How to...15. Laura Kelly and Patrick Stone: How to develop a research question16. Chris Todd: Writing a research proposal17. Peter Speck: How to gain research ethics approval18. Malcolm Campbell: How to use a statistician19. Julia M Addington-Hall: How to write a paper

Editorial Reviews

"The authors are among the world's leading palliative care researchers, which makes this book one of the definitive resources for those interested in palliative care research...Research Methods in Palliative Care represents a milestone in the palliative care literature by legitimizing the complexity of palliative care research. The book should be required reading for all mentors supervising palliative care research and all junior investigators considering a research career focused on palliative care research. Grant reviewers and funding agencies should also consider this book as an essential reference when evaluating palliative care proposals. The authors provide a comprehensive review of research methods while consistently remaining mindful of the unique challenges this patient populations present to researchers today."--Journal of Palliative Medicine