Saving Babies?: The Consequences Of Newborn Genetic Screening

Paperback | May 6, 2015

byStefan Timmermans, Mara Buchbinder

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It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives—inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In Saving Babies?, Stefan Timmermans and Mara Buchbinder evaluate the consequences and benefits of state-mandated newborn screening—and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology.
 
Drawing on observations and interviews with families, doctors, and policy actors, Timmermans and Buchbinder have given us the first ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns. Ideal for scholars of medicine, public health, and public policy, this book is destined to become a classic in its field.

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It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early detection of...

Stefan Timmermans is professor and chair of sociology at the University of California, Los Angeles and the author of Postmortem: How Medical Examiners Explain Suspicious Deaths, among other books. Mara Buchbinder is assistant professor of social medicine and adjunct assistant professor of anthropology at the University of North Carolin...

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Format:PaperbackDimensions:320 pages, 9 × 6 × 0.8 inPublished:May 6, 2015Publisher:University Of Chicago PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:022627361X

ISBN - 13:9780226273617

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Table of Contents

Acknowledgments
Introduction: The Consequences of Newborn Screening

Chapter 1. The Expansion of Newborn Screening
Chapter 2. Patients-in-Waiting
Chapter 3. Shifting Disease Ontologies
Chapter 4. Is My Baby Normal?
Chapter 5. The Limits of Prevention
Chapter 6. Does Newborn Screening Save Lives?

Conclusion: The Future of Expanded Newborn Screening

Notes
References
Index

Editorial Reviews

“Recommended reading.”