Shared decision-making in health care: Achieving evidence-based patient choice

Paperback | June 7, 2009

EditorAdrian Edwards, Glyn Elwyn

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When the first edition of this book came out in 2001 (under the title Evidence-based Patient Choice: Inevitable or Impossible?), it examined the emerging themes of patient choice and clinical decision-making, and looked at how these might develop in the future. Since then, these issues havebecome even more topical. Evidence-based medicine is deeply ingrained in the practice of modern medicine, whilst patient choice is increasingly high on the political agenda. But can the two trends co-exist? 'Shared decision-making' has developed in response to the sometimes uneasy relationshipbetween a patient's right to have input into their treatment options, and a clinician's responsibility to provide the best evidence-based health care.Imagine a patient with osteoarthritis of the knee. She and her doctor are considering whether she would benefit from surgery to replace her knee joint. This sort of decision is typical of many in health care where there is more than one reasonable alternative available to the patient and her doctor.These alternatives include surgery, physiotherapy, medication, complementary remedies, and more. What is right for one patient may be different from what is right for another. Clinical information (such as results of x-rays or even patient-reported symptom scores), though necessary, is notsufficient to determine the best treatment. Most importantly, each patient feels differently about the impact of the illness in their life and the importance of the potential good and bad outcomes of the treatment options. In these situations, the best treatment is the one that reflects what is mostimportant to patients who are well-informed about the options and potential outcomes. The shared decision-making approach helps doctors and patients to decide on the appropriate treatment.This timely book explores shared decision-making by examining from practical and theoretical perspectives what should be part of the decision-making process, what the benefits and potential difficulties are when it is attempted, and examples of how this is achieved in real health care practice forseveral health conditions. Finally, it also examines how this type of health care is likely to become more common place in the future.

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When the first edition of this book came out in 2001 (under the title Evidence-based Patient Choice: Inevitable or Impossible?), it examined the emerging themes of patient choice and clinical decision-making, and looked at how these might develop in the future. Since then, these issues havebecome even more topical. Evidence-based medic...

Adrian Edwards is Professor of General Practice at the Department of Primary Care and Public Health at Cardiff University. He is also a part-time general practitioner in Cwmbran, Gwent, South Wales seeing about 80 patients per week, and holds a visiting chair at the University of South Denmark in Odense. His two main research interest...

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Format:PaperbackDimensions:356 pages, 9.69 × 6.73 × 0.04 inPublished:June 7, 2009Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199546274

ISBN - 13:9780199546275

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Table of Contents

1. Adrian Edwards and Glyn Elwyn: Shared decision-making in healthcare: achieving evidence-based patient choice2. Margaret Holmes-Rovner and David Rovner: International collaboration in promoting shared decision making: a history and prospects3. Vikki Entwistle: Patient involvement in decision-making: the importance of a broad conceptualisation4. France Legare and Dawn Stacey: Shared decision making: the implications for healthcare teams and practice5. Dawn Stacey, France Legare and Jennifer Kryworuchko: Evidence-based healthcare decision making: roles for health professionals6. Hazel Thornton: Evidence-based health care: what roles for patients?7. Hilary L. Bekker: Using decision-making theory to inform clinical practice8. Tim Rapley and Carl May: Evidence and risk: the sociology of health care grappling with knowledge and uncertainty9. Soren Holm and Myfanwy Davies: Ethical issues around evidence-based patient choice and shared decision-making10. Ivar Sonbo Kristiansen: The economics of shared decision-making11. Amiram Gafni and Cathy Charles: The physician-patient encounter: an agency relationship?12. Madeleine J. Murtagh: Decision-making, power and the doctor patient relationship13. Theresa M. Marteau: Informed choice: a construct in search of a name14. Anne Rogers: Developing expert patients15. Michelle Edwards, Sophie Hill and Adrian Edwards: Health literacy - achieving consumer 'empowerment' in health care decisions16. Marla L. Clayman and Gregory Makoul: Conceptual variation and iteration in SDM: the need for clarity17. Glyn Elwyn and Cathy Charles: Shared decision-making: from conceptual models to implementation in clinical practice18. Hilary Llewellyn-Thomas: Values clarification19. Adrian Edwards: Risk communication - making evidence part of patient choices20. Glyn Elwyn, Benjamin Elwyn and Talya Miron-Shatz: Measuring 'decision quality': irresolvable difficulties and an alternative proposal21. Karen R. Sepucha and Albert G. Mulley: A practical approach to measuring the quality of preference-sensitive decisions22. Angela Coulter: What's happening around the world?23. Dennis J. Mazur: Medico-legal aspects of evidence-based choice and shared decision-making24. Paul Kinnersley and Adrian Edwards: Helping consumers with their information needs25. Lisa M. Schwartz, Steven Woloshin and H. Gilbert Welch: Helping consumers to know their chances26. Hilda Bastian, Marco Knelangen and Beate Zschorlich: Making information available to patients and the general public: the example of 'Informed Health Online' from Germany27. Annette M. O'Connor and Adrian Edwards: The role of decision aids in promoting evidence-based patient choice28. Dawn Stacey, Carol Bennett, Anton Saarimaki, Sara Khangura, Karen Eden and Nananda Col: How effective are patient decision aids?29. Marie-Anne Durand and Glyn Elwyn: Examining the theoretical foundation of decision support technologies30. Anna Winterbottom and Hilary Bekker: Should patient stories be used in decision aids?31. Elizabeth Murray: The role of internet-delivered interventions in self-care32. Richard Thomson: Decision analysis - utility for everyday use?33. Glyn Elwyn and Annette O'Connor: The International Patient Decision Aids Standards (IPDAS) Collaboration: the checklist, the instrument and next steps34. Hilary Llewellyn-Thomas: The decision research lab35. Alan Montgomery: Decision aids for preventing cardiovascular disease36. Sascha Kopke and Ingrid Muhlhauser: Decision aids in multiple sclerosis37. Anne Kennedy: Decision aids / shared decision-making in Inflammatory Bowel Disease38. Daniela Simon, Celia E. Wills and Martin Harter: Shared decision-making in mental health39. Joanne Protheroe: Decision aids and shared decision-making in menorrhagia40. Matthias Lenz and Ingrid Muhlhauser: Decision aids in diabetes41. Jeff Belkora: Promoting critical reflection in breast cancer decision-making42. Anne M. Stiggelbout and J. Kievit: Aneurysms of the abdominal aorta43. Rhodri Evans: From leaflets to edutainment: the evolution of PSA decision support tools44. Michael J. Barry: Decision support in the treatment of prostate conditions45. Alexandra Barratt and Joan Austoker: Decision aids and shared decision-making in mammography screening46. Carmen Lewis and Michael Pignone: Decision aids to promote shared decision-making for colorectal cancer screening47. Trudy van der Weijden, Ben van Steenkiste and Marije S. Koelewijn-van Loon: Shared decision-making in cardiovascular risk management: experiences and challenges48. Lyndal Trevena and Julie Leask: Decision aids for MMR vaccination49. Clara L. Gaff and Bettina Meiser: Supporting decisions in clinical genetics50. Christopher Price: A Devils' Advocate: do patients really want shared decision-making?51. France Legare, Stephane Ratte, Karine Gravel and Ian D. Graham: Barriers and facilitators to implementation of shared decision making52. Carl May, France Legare, Trudy van der Wiejden and Glyn Elwyn: Understanding factors that retard the normalization of decision-support technologies53. Angela Towle and William Godolphin,: Education and training of health care professionals54. Glyn Elwyn, Annette O'Connor, Dominick Frosch, Bob Volk and Deb Feldman-Stewart: Decision aids and beyond: the next decade of decision support technologies...55. Donald W. Kemper: Information therapy: tomorrow's promise is happening today - an example from the commercial sector56. Glyn Elwyn and Adrian Edwards: "It's what we do around here": shared decision-making as a future organisational competence

Editorial Reviews

"This impressive edited book . . . is truly excellent . . . essential reading for all those interested in patient involvement and evidence-based health-care." --Health Expectations, 5