Silent Partners: Human Subjects and Research Ethics by Rebecca DresserSilent Partners: Human Subjects and Research Ethics by Rebecca Dresser

Silent Partners: Human Subjects and Research Ethics

byRebecca Dresser

Hardcover | November 15, 2016

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When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missedsomething important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission. Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about the experience that other people can overlook. Their experience as subjects gives them special insights into ethics, too. Experienced subjects also know aboutproblems that can lead people to refuse to join studies, or drop out before studies are complete. Scientists and ethicists often speak of subjects as partners in research, but the reality is quite different. Experienced subjects are rarely appointed to the advisory groups that create guidelines for ethical research, or to the committees that review individual studies to determine whether theymeet ethical and regulatory standards.A large body of work describes the perceptions and viewpoints of people who have participated in research. But experts rarely use this material to guide improvements in human subject protection. Although subjects have the power to decide whether to participate in a study, they have little controlover anything else that goes on in research. Silent Partners moves research subjects to the forefront. It examines what research participation is like for healthy volunteers and patients. It explains why subjects' voices should influence research ethics. Silent Partners shows how experienced research subjects can become real - not justsymbolic - partners in research.
Rebecca Dresser has taught medical and law students about legal and ethical issues in biomedical research, end-of-life care, genetics, and related topics since 1983. From 2002-2009, she was a member of the President's Council on Bioethics and from 2011-2015, a member of the National Institutes of Health Recombinant DNA Advisory Committ...
Title:Silent Partners: Human Subjects and Research EthicsFormat:HardcoverDimensions:320 pages, 8.25 × 5.5 × 0.98 inPublished:November 15, 2016Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0190459271

ISBN - 13:9780190459277

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Editorial Reviews

"Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinicaltrials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments." --Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania