The Drama of DNA: Narrative Genomics

Paperback | April 24, 2014

byKaren H. Rothenberg, Lynn W. Bush

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Through the use of dramatic narratives, The Drama of DNA brings to life the complexities raised by the application of genomic technologies to health care and diagnosis. This creative, pedagogical approach shines a unique light on the ethical, psychosocial, and policy challenges that emerge ascomprehensive sequencing of the human genome transitions from research to clinical medicine. Narrative genomics aims to enhance understanding of how we evaluate, process, and share genomic information, and to cultivate a deeper appreciation for difficult decisions encountered by health careprofessionals, bioethicists, families, and society as this technology reaches the bedside. This innovative book includes both original genomic plays and theatrical excerpts that illuminate the implications of genomic information and emerging technologies for physicians, scientists, counselors, patients, blood relatives, and society. In addition to the plays, the authors provide ananalytical foundation to frame the many challenges that often arise.

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Through the use of dramatic narratives, The Drama of DNA brings to life the complexities raised by the application of genomic technologies to health care and diagnosis. This creative, pedagogical approach shines a unique light on the ethical, psychosocial, and policy challenges that emerge ascomprehensive sequencing of the human genome...

Karen H. Rothenberg, JD, MPA serves as Senior Advisor on Genomics and Society to the Director, National Human Genome Research Institute and Visiting Scholar, Department of Bioethics, Clinical Center, National Institutes of Health. She is the Marjorie Cook Professor of Law, Founding Director, Law and Health Care Program and former Dean,...
Format:PaperbackDimensions:208 pages, 9.25 × 6.12 × 0.68 inPublished:April 24, 2014Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199309353

ISBN - 13:9780199309351

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Table of Contents

Eric D. Green: ForewordKaren H. Rothenberg and Lynn W. Bush: Preface1. Setting the Genomic StageWhy Genomics, Why Narratives, Why Now?Exploring Ethical, Psychosocial and Policy Challenges of Next-Gen SequencingPart I Narrative Genomics: Exploring Process in Context2. Anticipating the FutureGenomic Protocols and Ethics ConsultationsScene I The IRB MeetingScene II The Genomic Advisory CommitteeOnline Play "Imagining a Genomic Crystal Ball"Additional Questions3. Informing the FutureThe Process of Consent and Disclosure of Genomic InformationScene I The Informed Consent ProcessScene II The Return of Genomic FindingsOnline Play "It's Not That Simple" and "It's So Complicated"Additional Questions4. Reframing an "Open Future"The Shifting Landscape From NBS to NBSeqScene I The Paradoxes of NBSeqScene II The Practical Concerns in "Pandora's Box"Online Play "The Paradoxes in Pandora's Box"Additional QuestionsPart II Integrating Narrative Genomics: A Case Study Drama5. Reconceptualizing the Past, Present and FutureNext Gen Sequencing - "What's Next?!"Scene I The IRB DeliberationScene II The Informed Consent ProcessScene III The Clinical Ethics ConsultationScene IV The Return of Genomic FindingsOnline Play "What's Next?!"Additional QuestionsPart III Narrative Genomics on Stage: DNA, Society and Theatre6. Dramatizing the Past, Present and FutureTheatrical Narratives from Genetics to GenomicsSection I The Theatrical Double Helix and "Chromozones"Section II Mapping and Manipulating FateSection III A Genomic Crystal Ball in the Post-Mapping DecadeAdditional QuestionsReferences