The Limits of Consent: A socio-ethical approach to human subject research in medicine

Hardcover | February 1, 2009

EditorOonagh Corrigan, Kathleen Liddell, John McMillan

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Since its inception as an international principle to protect the welfare of patients and volunteers taking part in medical research, informed consent has become increasingly important within healthcare. Despite its ubiquitous status, there are a number of scholars who are beginning toquestion whether consent is adequate for contemporary biomedical research. The Limits of Consent considers a number of criticisms that have been levelled at the prominence given to autonomy, a central tenet underpinning the rationale for informed consent in Western bioethics. It raises questionsabout how quickly and easily this principle has been adopted, and how appropriate it is for those actively engaged in research. In the context of genetic research, for example, the individual's overriding right of autonomy to give consent to research could have huge implications for other membersof their families.The Limits of Consent questions the assumption that informed consent protects or facilitates individual autonomy, and discusses empirical studies which suggest that gaining a truly informed consent can be difficult to achieve in practice. With the expectation of treatment and guidance from thephysician, how much is the process of consent governed by social norms and expectations? The Limits of Consent focuses upon three principal areas within biomedical research: clinical trials, genetic research, and research with those who may have impaired capacity to consent. It is a trulymulti-disciplinary book, incorporating perspectives from medicine, law, philosophy and sociology.The Limits of Consent is a fascinating exploration of the inadequacies of consent, and will appeal to those in the fields of bioethics, socio-legal studies, sociology, and health law. Policy makers, research ethics committee members, and those healthcare professionals with an interest in medicalethics, will also find the book of interest.

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Since its inception as an international principle to protect the welfare of patients and volunteers taking part in medical research, informed consent has become increasingly important within healthcare. Despite its ubiquitous status, there are a number of scholars who are beginning toquestion whether consent is adequate for contempora...

Oonagh Corrigan's areas of research include informed consent, clinical trials, genetics and medical education. In 2007 she held a Leverhulme Trust visiting abroad fellowship at the University of British Columbia, and has previously held lectureship positions in Sociology at the Universities of Cambridge and Plymouth. She is editor of ...

other books by Oonagh Corrigan

Format:HardcoverDimensions:256 pages, 9.21 × 6.14 × 0.03 inPublished:February 1, 2009Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:019923146X

ISBN - 13:9780199231461

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Table of Contents

Oonagh Corrigan, John McMillan and Charles Weijer: Introduction1. Soren Holm and Soren Madsen: Informed consent in medical research - a procedure stretched beyond breaking point?2. Paul Miller and Charles Weijer: Beyond consent: the trust-based obligations of physicians to patients in clinical research3. Paul Miller and Josephine Johnston: Consent and private liability in clinical research4. Clare Snowdon, Diana Elbourne and Jo Garcia: The decision to refuse consent to participation in a clinical trial: does a double standard exist?5. Kathleen Liddell: Beyond a rebarbative commitment to consent6. Angus Dawson: The normative status of the requirement to gain an informed consent in clinical trials: comprehension, obligations and empirical evidence7. Stephen John: Is there an obligation to participate in medical research?8. Julian Hughes, Karen Barrass, Joanne Collerton, Erica Haimes, Tom Kirkwood and Lorraine Summerville.: Consent with older people: research as a virtuous relationship9. Philip Bielby: Putting consent in its place: the case of mentally disordered research subjects10. Margaret Ponder, Helen Statham, Nina Hallowell and Martin Richards: Is consent sufficient? - a case study of qualitative research with men with intellectual disabilities11. Nina Hallowell: Consent to genetic testing: a family affair?12. Michael Burgess and James Tansey: Cultural authority of informed consent: indigenous participation in biobanking and salmon genomics focus groupsMartin Richards and Kathleen Liddell: Conclusion