The Scleroderma Book: A Guide for Patients and Families

Hardcover | May 19, 2005

byMaureen D. Mayes

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The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessibledescription of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and theblood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctortreat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics ofscleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation

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From the Publisher

The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes dra...

Maureen Mayes, M.D. is Professor of Medicine at the University of Texas Houston Medical School, where she directs the Scleroderma Clinic. She is a past president and director of the National Board of Directors for the United Scleroderma Foundation, and serves on its Medical Advisory Board.

other books by Maureen D. Mayes

A Visual Guide to Scleroderma and Approach to Treatment
A Visual Guide to Scleroderma and Approach to Treatment

Kobo ebook|Jun 18 2014

$101.39 online$131.64list price(save 22%)
Format:HardcoverDimensions:224 pages, 5.71 × 8.31 × 1.1 inPublished:May 19, 2005Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0195169409

ISBN - 13:9780195169409

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"This easily understandable book describes the background of scleroderma and how scleroderma can affect a person. It is of great value to patients who have been recently diagnosed with the disease and also to those who have suffered longer. The last section, on coping with scleroderma,although short, should be particularly useful for patients learning to live with scleroderma." --Daniel E. Furst, MD, Carl M. Pearson Professor of Rheumatology, Director of Clinical Research, David Geffen School of Medicine at UCLA