Transforming the Culture of Dying: The Work of the Project on Death in America

Hardcover | June 17, 2013

byDavid Clark

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Over a period of almost 10 years, the work of the Project on Death in America (PDIA) played a formative role in the advancement of end of life care in the United States. The project concerned itself with adults and children, and with interests crossing boundaries between the clinicaldisciplines, the social sciences, arts and humanities. PDIA engaged with the problems of resources in poor communities and marginalized groups and settings, and it attempted to foster collaboration across a range of sectors and organizations. Authored by medical sociologist David Clark, whose research career has focused on mapping, archiving and analyzing the history and development of hospice, palliative care and related end of life issues, this book examines the broad, ambitious conception of PDIA - which sought to "transform theculture of dying in America" - and assesses PDIA's contribution to the development of the palliative care field and to wider debates about end of life care within American society. Chapters consider key issues and topics tackled by PDIA grantees which include: explorations of the meanings of death in contemporary American culture; the varying experiences of care at the end of life (in different settings, among different social and ethnic groups); the innovations in servicedevelopment and clinical practice that have occurred in the US in response to a growing awareness of and debate about end of life issues; the emerging evidence base for palliative and end of life care in the US; the maturation of a field of academic and clinical specialization; the policy and legalissues that have shaped development, including the ethical debate about assisted suicide and the Oregon experience; the opportunities and barriers that have been encountered; and the prospects for future development. A final chapter captures developments and milestones in the field since PDIAclosed in 2003, and some of the challenges going forward.

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Over a period of almost 10 years, the work of the Project on Death in America (PDIA) played a formative role in the advancement of end of life care in the United States. The project concerned itself with adults and children, and with interests crossing boundaries between the clinicaldisciplines, the social sciences, arts and humanities...

David Clark is Director of Interdisciplinary Studies at the University of Glasgow.

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Format:HardcoverDimensions:292 pages, 9.25 × 6.12 × 0.98 inPublished:June 17, 2013Publisher:Oxford University PressLanguage:English

The following ISBNs are associated with this title:

ISBN - 10:0199311617

ISBN - 13:9780199311613

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Table of Contents

1. Brief History of the Project on Death in AmericaProject on Death in America: Programs and Grants, 1994-2003Exit Strategy2. Exploring the Meanings of DeathContemporary Meanings and Practices Relating to Death and DyingArts and Humanities Grants Program3. Highlighting Experiences of CareGiving and Receiving CareCommunity and Media Representations4. Service Innovation and Practice DevelopmentsServicesClinical Practice5. Opportunities, Barriers, and Underserved CommunitiesPolicy MattersUnderserved Communities6. Ethical, Legal, and Financial issuesThe Question of Assisted SuicideWider Ethical IssuesLegal and Financial Matters in End-of-Life Care7. Developing the FieldA Science of CareProfessional Educational InitiativesSpecialization, Recognition, and Interdisciplinary issues8. Assessing the Impact of the Project on Death in AmericaModus OperandiThe Special Role of the Faculty Scholars The ImpactThe Impact9. A Culture Transformed? Post-PDIA Progress in Palliative and End-of-Life CareContinuing Role of FoundationsOngoing Work of PDIA Faculty Scholars, Leaders, and GranteesFuture Challenges